Within the last week I have been contacted by a few other mom's who are in similar situations as I am. Just yesterday I received a friend request on Facebook from a mom who found me through a Congenital Glaucoma group. Not only does her son have Glaucoma, but she also lives in NJ and sees the same doctors as Emily does! Her son is 2 years old and is waiting for a cornea transplant with Dr. Zaidman. Plus, after she had already found me on Facebook, she was told about an article in the paper about a little girl with eye problems. She read it and realized that it was Emmy's story! I had goosebumps reading her email as she described all the similarities between her son and Emmy, and how she came to find me. Truly amazing! I'm sure her and I will form a great friendship, we are already connected in such a powerful way.
Then last night I received an email from another mom who said she sat and read this entire blog! Her daughter also has a visual impairment and she wanted to let me know I am not alone. She gave me the address to her blog as well. I am so touched by all these new connections with other parents, this was the reason I started this blog in the first place. I had tears in my eyes as I read some of the posts...I truly wasn't alone. There are other people out there who are going through the exact same thing as I am. They are finding me and I am finding them.
Katie's blog address is:
Maddy News - http://visualimpairmentsmaddy.blogspot.com/
In reading her blog I also came across another blog about a baby struggling with a visual impairment. I started to scan through some of the posts and found out that this little girl, named Lilah also has Peter's Anomaly. I was again in tears reading some of the posts.
Her blog address is:
Lilah's Hope - http://lilahhope.blogspot.com/
Please check them out, these families are struggling in the same ways we are and they need our support too.
We will look forward to learning more about Emily and your family! Stay strong!
ReplyDeleteI am here! I will ALWAYS be here!!!
ReplyDeleteThank you for the shout out! We LOVE new friends!!!!!
I thank the Lord for the internet!
I will read and read abut Emily.
Like I said...I am here for you!